'Chemo curls' another kink in cancer recovery

Courtesy of Sarah Thebarge

On the left, a pre-chemo Sarah Thebarge still has her thin, blond locks. On the right, Thebarge shows off her "chemo curls."

After eight rounds of chemotherapy for her stage 1 breast cancer, Sarah Thebarge didn’t have a hair on her head. And what did eventually emerge from her scalp looked nothing like the blonde, thin hair she’d had all her life.

“It was thick, and it was curly, and it was dark,” recalls Thebarge, who wrote about her experiences on her personal blog, Tropic of Cancer. “At first, it looked like I had gotten a really horrible perm. It was that curly.” And it was, to someone who’d had pin-straight hair all her life, “completely unmanageable.”

This texture change – called “chemo curls” -- is pretty universal among cancer patients who've undergone chemotherapy, explains Dr. Jyoti Patel, an associate professor of hematology and oncology at Northwestern University.“All my patients say they got the permanent they never wanted,” she said. “The texture is often difficult to manage, and tends to be really wiry and difficult to style.”

Chemotherapy is very effective at killing rapidly dividing cells -- but it can’t tell the difference between cancer cells and normal cells, such as hair follicles. That’s why so many cancer patients lose their hair during chemotherapy, among other side effects.

Chemo also causes hair to grow more slowly after treatment is finished, and patients can pick up extra pigment when that happens, Patel said. But doctors aren’t totally sure what causes the change in hair texture post-chemo. “We think that it has to do with chemotherapy effects getting out of the system,” Patel wrote in an e-mail. Hair that was deep in the follicle takes a while to grow out, so that initial growth post-treatment will look pretty wacky for most people.

Patel tells her patients that their initial hair growth after chemotherapy is unlikely to feel like their own, and that “to populate your head and get your own hair back is usually a six to nine month process.”

For Thebarge, now 32 and working as a physician’s assistant in Portland, Ore., the process took more like 18 months.  “(My hair) went from bedsprings to ringlets and then finally got to point where I could make it go straight,” she said.

Chemo curls affect both men and women, but since men usually wear their hair shorter than women, they often cut off the initial growth before it becomes a styling nightmare. Patel said that older patients tend to be less bothered by hair that’s curly or a different hue than before, since theirs might have been going gray or thinning prior to chemo.

But for younger patients like Thebarge, who was just 28 when she started treatment, the changes can be more jarring. Her post-chemo hair, she recalled, was a constant reminder that life was different. “Having those physical cues to remind you helps you make the transition. You can point them out to people and say ‘I’m different. I’ll never be the same.’”

Today, four years after she started chemotherapy, Thebarge is cancer-free, and on maintenance medication to prevent a recurrence. Her hair is super-straight again, but still dark, and about the same length as it was before starting treatment.

Hair, said Thebarge, becomes a symbol for how much cancer changes your life, and how much you’ve lost to it. But her locks became “not a symbol of loss, but a symbol of hope.”

“I can point to my hair and say, ‘I had cancer this long ago,’” she said.

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At 29 I have my first round of chemo, I probably had my last one when I was 36 years old. I had three different types of Chemo and I went probably five years in a row without any hair. It got to the point I didn't care to walk around everywere with a bald head (I learn to live with the stares). I never understand why people point me as a brave woman until I realize how much importance they give to appearences here in the U.S. If any body ask me what I lose with cancer and the treatments, I would say " I lose the chance to live my life the way I wanted, and I have to learn to live my life the way cancer dictated"

We need to put more enfasis not in appearances , but in health habits, nutrition and exercice.

  • 20 votes
Reply#1 - Wed Mar 23, 2011 9:49 AM EDT

Hmnnnnn So I'm hearing that curly or kinky hair is undesirable, no wonder African American feel that they must straighten their hair, here is one of those hidden and subconscious racial prejudices that exists in our society. Congrats to all you Cancer survivors no matter what your hair looks like.

  • 8 votes
#1.1 - Thu Mar 24, 2011 9:17 AM EDT

Vulcan One, please don't try and make this topic one of a racial nature. As a woman who has had naturally curly hair for her entire life, I'm think that I'm entitled to speak upon this matter. Curly hair can be a challenge to care for properly. Sometimes it's like having a barometer on your head, as the curls respond to changes in humidity. (Childhood summers spent on an island in the Outer Banks of North Carolina made for some interesting hairdos, lol!) As an adult, I've learned to accept my curls, although I do have it temporarily straighted when I have it cut or for special events as a fun change. I did, however, wear my curls for my wedding day. I wouldn't have felt like myself on that most important of days without them! That feeling of being "like yourself", is the crux of the matter, Vulcan One. Going from having pin-straight locks to a full head of curls is a shock which has nothing to do with closet racism.

  • 11 votes
#1.2 - Thu Mar 24, 2011 7:35 PM EDT

I lost my long, straight dark hair and when my hair grew back in, it came in blonde and curly. I have blonde, curly hair to this day--12 years breast cancer free. I'm just happy to be alive...however I look!

  • 6 votes
#1.3 - Tue Mar 29, 2011 9:40 AM EDT

Once finally through with chemo, I was just so happy to have ANY hair! Yes, we put way too much emphasis on appearance. Who cares what the texture or color is----it's hair growing out of your scalp = sign of positive changes going on. Enjoy every moment, every day.

  • 2 votes
#1.4 - Wed Mar 30, 2011 10:57 PM EDT

I'm with pchefpittsburgh - it's not racial. After chemo my hair turned curly too, and I'm glad to have it, but...having had straight hair all my life, I'm at a loss as to how to style it. I'd love to take advantage of the curliness, but I don't know how. Even my hairdresser blows it straight. I've had the curls for 2 years now and they show no sign of uncurling themselves.

  • 1 vote
#1.5 - Thu Mar 31, 2011 11:27 AM EDT
Reply

I don't know but for me my hair stayed curly after 2 bouts of Hodgkins' Lymphoma :P. I am not complaining my wife loves it. But yeah managing it though is a pain unless I am in the shower brushing it then though once it dries it does what it wants to do again lol. I had my cancer when I was 16 then I relapsed 10 months later when I was 17...

  • 1 vote
Reply#2 - Wed Mar 23, 2011 9:50 AM EDT

An alternative to chemo!

In 1974 researchers at the medical College of Virginia, funded by the National Institute of health to find evidence that cannabis harms the immune system, found instead that it shrank three kinds of cancer on mice, lung, breast, and a virus induced leukemia. The DEA quickly shut the study down and the results were censored. It wasn't until 2000 that Dr. Manuel Guzman of Complutense University in Madrid Spain rediscovered that cannabinoids destroy tumors with no negative side effects whatsoever! These findings have been proven true many times since.
Read the study for yourself

http://www.brainlife.org/reprint/2003/guzmán_m031000.pdf

Read this about the 1974 study, too!

http://www.alternet.org/story/9257/

  • 8 votes
Reply#3 - Wed Mar 23, 2011 11:19 AM EDT

I looked up your links, thanks for the info, Look up Run From the Cure on youtube.

  • 1 vote
#3.1 - Wed Mar 23, 2011 3:01 PM EDT

I have great respect for Mr. Simpson!

Sorry the Guzman study didn't go through. Try this.

http://americanmarijuana.org/Guzman-Cancer.pdf

  • 1 vote
#3.2 - Wed Mar 23, 2011 3:59 PM EDT

My brother who just died on March the 7th smoked pot for over 40 years.He died of oat cell lung cancer.That study sucks.

  • 1 vote
#3.3 - Thu Mar 24, 2011 7:05 AM EDT

I have cancer and smoke pot daily, and it truly helps me with my battle. I dont feel like I'm actually sick with cancer. It helps with my anxiety as well, knowing I have this cancer can be quite nerve racking. My doctors in fact have asked why I believe I'm doing so well & feeling so well, while having stage 2 cancer- my reply is because I smoke weed. Not everyone with cancer that smokes weed will get better. I'm truly sorry for your loss, however you can't blame pot for your brothers death...

Smoke weed, not cigarettes!!

  • 4 votes
#3.4 - Thu Mar 24, 2011 9:07 AM EDT

I actually thought that the curly hair looked healthier and better. Her hair before looked overprocessed and unhealthy with the new shiny healthy curls are so much better.

  • 1 vote
#3.5 - Wed Mar 30, 2011 1:58 PM EDT
Reply

That woman's hair looked like she chemically processed it before treatment. The ends are really bright but the roots are dark.

  • 3 votes
Reply#4 - Wed Mar 23, 2011 11:36 AM EDT

Mine's like that and not chemically processed at all. She probably spent a lot of time in the sun like me. Surfer.

  • 2 votes
#4.1 - Wed Mar 23, 2011 2:42 PM EDT
Reply

I had cervical cancer and had only 6 rounds of cysplatin and was told repeatedly that I would lose my hair. I never did lose any hair, but I already had very naturally curly hair and it is still that way. Chemo didn't even change the texture. My healthcare providers were very surprised that it didn't fall out.

  • 4 votes
Reply#5 - Wed Mar 23, 2011 12:16 PM EDT

Cisplatin doesn't normally cause hair loss. However, carboplatin does cause hair loss. You can expect to be totally bald (head, armpits, eyebrows, down there, etc) in three weeks or so. I would be very concerned if my healthcare providers were that mis-informed about the side effects of these drugs.

  • 3 votes
#5.1 - Wed Mar 23, 2011 12:58 PM EDT

I too had cervical cancer and had six rounds of cysplatin. I did not lose my hair but it did thin. I had hair that had a slight wave, but now if I air dry it, it forms ringlets. My hair is fuller and thicker than it was before.

I will take the curly hair anyday and embrace it. My alternative was pretty grim. I was only given a 30% chance of survival and had stage 4. I am almost a 11 year survivor.

  • 28 votes
#5.2 - Wed Mar 23, 2011 1:03 PM EDT

I had 7 rounds of chemo for head and neck cancer (tongue and lymph nodes)..hope any of you that smoke QUIT! I also had 35 radiation treatments. I was told I would lose my hair after the first round of chemo. Cut my hair very short but did not buzz it. Never lost it to chemo; only lost the very bottom back of my hair from where my radiation made it's exit! I had thin fine hair and do think it thinned more; but am glad to have it and glad to be alive. Stage 4 cancer; last treatment in Dec of 2010.

Congrats to you sk-1560608....you are a lucky person and glad to hear you have had 11 more years. That is something to be very excited about.

  • 3 votes
#5.3 - Wed Mar 23, 2011 2:56 PM EDT

Congrats to you!! I am a 10 year survivor. Really curly hair the first round of chemo, 17 years ago when I was 34, but the second time, 10 years ago, my hair came in almost black. I had light to med. brown hair to begin with.

  • 2 votes
#5.4 - Wed Mar 23, 2011 3:07 PM EDT

At 30, I was diagnosed with Ovarian and Uterine Cancer. I'm a 2 year survivor. My hair was striaght, brown and super thick before my chemo. After chemo it grew in brown (my original color) but it was way more thick than my hair before and it is curly. It's only curly though the longer I let it get. I will say it is extremely hard to manage but it's getting better day by day. I think it's just because I got so used to not having to do my hair that I lost all my hair doing abilities. From what I hear it's different for everyone. I lost all my hair every where except on my forearms. What's that about?

  • 2 votes
#5.5 - Wed Mar 23, 2011 4:04 PM EDT

sk-1560608 - I am very happy for you and I hope that you are writing about your one and only experience with chemo in another 11 years. I lost my 49yo wife of 24 years on the 11th of March. She progressed from 1B to 3B in a very short time. God bless you and I wish you health.

  • 2 votes
#5.6 - Wed Mar 23, 2011 4:11 PM EDT

Thank you all for your enlightening comments. My husband was diagnosed with Invasive Duct Carcinoma on March 1. Yes, Male Breast Cancer (MBC)! Mastectomy, 2 lymph nodes (only 1 indicated active cells). Will start chemo soon, possible radiation, then Tamoxifin for 5 years. Not known what chemo "cocktails" will be used. His biggest concern right now is hair loss. Thus, my appreciation for your comments. Thank you for sharing your journeys. I'm forwarding to my husband. God speed for continued good health. Condolences to all who have lost a loved one to this horrid disease. Please pass the word that Men get Breast Cancer, too. Visit malebreastcancer.org for unbelievably excellent information.

    #5.7 - Thu Mar 24, 2011 3:25 PM EDT

    I had HER2+ Stage 1B by one oncologist: Stage 2A by the second (it has not progressed outside the breast) and underwent TCH - taxotere, Carboplatin & Herceptin.....I had very long curly hair that I dried straight; it grew back pretty quickly after chemo ended and now it's short with a gorgeous wave (which was natural when I had the long hair).....finished chemo end July 2009; Herceptin April last year and loving the hair....hope all goes for OneWhoCares - get a doctor you can trust; go with the plan, don't let the cancer rule you and stay positive and live each and every day during treatment as well as you can. I walked, swam a mile each day when not playing tennis, travelled and made it intact - you go with the flow and although it ain't going to be great at times, you do what you do and I'll be praying for you both.

    • 1 vote
    #5.8 - Wed Mar 30, 2011 3:37 PM EDT
    Reply

    I also had chemo hair after breast cancer chemo. Unlike the woman in the article, I loved my new hair. It was soft and curly, it looked better than my pre-chemo hair. It stayed curley for about 18 months, and I was very disappointed when it started to go straight again. That was nearly 15 years ago. At the time, I used to joke that it was God's sense of humor - He took away my hair during chemo, then rewarded me with beautiful hair as compensation.

    • 12 votes
    Reply#6 - Wed Mar 23, 2011 12:16 PM EDT

    I was 62 when I started chemo and my hair was already turning gray - an ugly course steel gray. After chemo, my hair came back a much softer texture and a much prettier gray. I have people stop me all the time asking who does my hair and how can they get the same color. At least something positive came from the cancer/chemo that I went through.

    • 2 votes
    Reply#7 - Wed Mar 23, 2011 12:31 PM EDT
    charlsDeleted

    Randi, I thought the same thing.  It's possible, however, that the sun lightened it and it always seemed blonder to her (that's how my daughter's always was.)  Either way, I'm sure the dark regrowth is a shocker.  I actually like the shorter curlier look better than the stringy straight stuff on her.  And it looks more stylish.  She will probably get used to it and then it will go straight, like some of these others.  My sister also got the chemo curls.  I love it.

    • 1 vote
    Reply#9 - Wed Mar 23, 2011 1:11 PM EDT

    Realizing it's pretty jarring to have your hair changed against your will, I will say that I think she looks better in the "after" picture.  Just saying.

    • 6 votes
    Reply#10 - Wed Mar 23, 2011 1:13 PM EDT

    Jarring??? How about dying, that is jarring. Hair is nothing. Don't make it sound like such a big deal.

    • 2 votes
    #10.1 - Wed Mar 23, 2011 4:13 PM EDT

    Are you a woman engnenk? Have you ever had cancer? It is jarring to have something so personal changed against your will. How would you like to look in the mirror and not recognize yourself? I had stage IIIC cancer last year and after surviving now I have this constant reminder when I look in the mirror. I'm ready to move on with my life.

      #10.2 - Wed Mar 23, 2011 10:33 PM EDT

      Actually I am not. I am a man who lost the love of my life to cancer on the 11th of March. Let me explain jarring to you. I don't need to look in the mirror to see that I am forced to move on with my life and the lives of our children aged 8 & 11. Here are some daily jarring events:

      • calls from solicitations asking for my wife;
      • the empty seat in the car;
      • the empty seat at the table;
      • all of the cosmetics, hair care supplies, etc;
      • her clothes;
      • her shoes;
      • planning a memorial service;
      • the never ending stream of medical bills;
      • her favorite foods;
      • going to the grocery store;
      • paying utility bills;
      • juggling the childrens' school and social schedules while I struggle to keep my job;
      • the notes that she left for her children;
      • the notes that she didn't finish because of the pain medication;
      • well meaning words of comfort;
      • "friends" who don't call anymore;
      • lost friends who do call;
      • children who cry at night;
      • need I go on?

      Let me tell you what is not jarring. Looking in the mirror and seeing someone who is still alive and is able to participate in all of the daily events no matter how mundane.

      If you find a change in your hairstyle jarring, you really need a reality check and you need to stop being so petty.

      • 8 votes
      #10.3 - Thu Mar 24, 2011 4:02 AM EDT

      engnenk - I am so sorry for your loss. Thank you for expressing my exact same sentiments so much better than I ever could.

      • 2 votes
      #10.4 - Thu Mar 24, 2011 11:37 AM EDT
      Reply

       DH was typicall male-pattern-bald before he was diagnosed with cancer that metasticied to his brain.  The pallative radiation they gave him caused the 2 inch fringe of hair he had to fall out.  A month or so after radiation concluded, I noticed a dark shadow on the top of his head.  Thinking that he'd brushed against something oily in the garage, I tried to wipe it off.  Imagine our surprize when we discovered fine hair growing in-where hair had not been seen for more than twenty years!! 

      • 3 votes
      Reply#11 - Wed Mar 23, 2011 1:14 PM EDT

      that is so cute, it will be like falling in love all over again, and you loved him bald and will love him hairy!

      • 1 vote
      #11.1 - Wed Mar 23, 2011 2:20 PM EDT
      Reply

      Dang, I got cheated! I was diagnosed with ovarian cancer at age 59 (four years ago), had six rounds of chemo (taxotere and carboplatin), and went bald all over. When my hair started to come back it was a little darker than before (it had started to go gray from its previous auburn), but sparser. It was always finely textured, but had a slight wave. Now it's very straight and my scalp shows through on top. I keep looking at Rogaine for Women in the drugstore, but then read the fine print with the side effects and always put it, regretfully, back on the shelf. I just keep it cut short, which looks kind of prison-guardish, but it's the only way to give it any body; if I let it grow it's pretty much just limp. Oh, well, I'm alive.....(:>)

      • 1 vote
      Reply#12 - Wed Mar 23, 2011 1:14 PM EDT

      remember, it's just hair. YOU ARE ALIVE, keep the faith and remember you are BEAUTIFUL! don't do the danger of rogaine, why chance it.

      • 6 votes
      #12.1 - Wed Mar 23, 2011 2:23 PM EDT
      Reply

      Several years ago my mother went through 6 rounds for her stage 3 Lymphomia. Once she was in remission, her hair came back just like this lady's only her's was silver gray! She tried to have the color changed, but the hair dye just washed right out. It took about a year or so, but it started to straighten out and the color came back. She's back in treatment now, but with Rituxan so there is no hair loss. I'm sure anyone who beats cancer is just glad to have their health. Being able to worry about your hair is a blessing after facing down possible death. My best to anyone in treatment!

      • 2 votes
      Reply#13 - Wed Mar 23, 2011 1:15 PM EDT

      My chemo hair came back in curly and wiry just as the woman in the article.  I am in my 30s and have had very thin and straight hair all my life.  I always wished for thick curly hair.  Well, be careful what you wish for, because I got it.  I am almost one year out from finishing my chemo for breast cancer and I am thrilled just to have hair.  But, I did have to go to a salon just to be taught how to manage this new mane, because it's so unruly and I have no clue how to deal with it.  Luckily, I have learned the VERY hard way that superficial things like hairstyles and bad hair days do not matter in the long run. 

        Reply#14 - Wed Mar 23, 2011 1:20 PM EDT

        If tightly curled hair was fashionable today, this article would have a completely different tone. But women by the millions are flat ironing their hair to get it stick straight for over 10 years now and that is the current beauty standard. It damages the hair and makes it so frizzy you need the flat iron more than ever. For someone with naturally wavy/curly hair - I say stop the madness! Natural hair looks best on everyone - whether it's curly or straight. Why must we all be sheeple?

        • 1 vote
        Reply#15 - Wed Mar 23, 2011 1:21 PM EDT

        They're ironing their hair again? We used to do that back in high school in the '60s! I remember kneeling beside the ironing board in the morning before school, and the smell of freshly ironed straight hair......

        • 1 vote
        #15.1 - Wed Mar 23, 2011 2:16 PM EDT
        Reply

        My niece's hair went curly after she went into remission, and it grew in much lighter too. She was bitty though, we first started noticing the different texture to her hair when she was around 3.

        • 1 vote
        Reply#16 - Wed Mar 23, 2011 1:27 PM EDT

        I had stage 3 NHL, went through 7months of Cemo, I had naturally curly hair, now its straight and stringy, so, I keep it short, small price to pay to stay alive. 14 years cancer free!

        • 4 votes
        Reply#17 - Wed Mar 23, 2011 1:32 PM EDT

        That's wonderful!! :)

        • 1 vote
        #17.1 - Wed Mar 23, 2011 1:41 PM EDT

        that's my attitude to... whatever I got is better than bald. love that attiture, it looks good on you!

        stay strong.

        • 1 vote
        #17.2 - Wed Mar 23, 2011 2:27 PM EDT

        All of you survivors give me great hope. I was diagnosed with IIIC Ovarian cancer last July. It was from diaphram to bladder. I had 2 surgeries and 6 chemos since. I lost all my medium brown, baby fine, straight, sparse hair all over. My head is sprouting strange looking grey and black but very sparse frizz. I am happy to see it and to be alive! I have had 2 normal CA135s and am ecstatic.

        • 3 votes
        #17.3 - Thu Mar 24, 2011 11:22 AM EDT
        Reply

        I am a survivor of Non-Hodgkin's Lymphoma and lost all my dark straight hair...when it returned, it definitely came back curly. I wake up everyday, happy to be alive and laugh at the curly, thick, fairly unmanageable hair and say "humm...I wonder what its going to do today?" and laugh again! Small price to pay for my life!! I have had this lovely mop since May 2010. It is welcome to do whatever it wants as long as I remain healthy!!

        • 3 votes
        Reply#18 - Wed Mar 23, 2011 1:33 PM EDT

        I discovered when I lost my eyebrows that there are no rules about them. So when I went to Chemo, I painted them in different colors and shapes. Sometimes blue check marks, sometimes green curleecues. WHATEVER I wanted. It gave me a tiny feeling of control when everything was anything but. And cheered everyone at chemo whenever I showed up. Cancer Schmancer! Tomorrow marks my 5th anniversary from stage 3 HR2pos B cancer.

        When I had 3 hairs, I wore them in a braid, when I had 2 hairs, I parted them in the middle. When I had 1 hair, I put it in a ponytail. When I had no hair - I wore my biggest smile.

        • 1 vote
        #18.1 - Wed Mar 23, 2011 11:37 PM EDT

        You made me smile! Love your attitude! No wonder they cheered!

          #18.2 - Thu Mar 24, 2011 8:07 AM EDT
          Reply

          My son, a former Marine serving front line in Iraq had a friend killed beside him & his best friend shot in the jaw 2 weeks later. Due to the severe stress I was going through, I lost almost all of my hair. Prior, it was straight as a board. When it grew back, it has tremendous waves. They do straighten with some work, but it changed forever, I am afraid. Something Noone really things about stress causing. Maybe that is one part of the equation to losing hair with cancer & chemotherapy not really studied before.

            Reply#19 - Wed Mar 23, 2011 1:34 PM EDT

            I wish I still had my chemo hair. It was very soft and curly. The advantage was that when I lost my hair I also lost my roots. It has been 4 years and I refuse to color my hair as I figure what I have now is what God wants me to have.

            Technically, it starts to fall out 17 days after the first treatment. Mine was right on the money, 17 days. Exactly. When it first started to grow back in it was bright white (I was 48). It has since mellowed back to my original color, but since I have not processed it in any way, it is still nice and soft (with a little gray thrown in).

            I have also heard that some experiments were done and if the patient fasted the day before a chemo treatment all of the side effects (including hair loss) were much less.

            To all that are going through it... They do not tell you but it grows in much faster on the sides than it does on the top of your head. Do not fear, it will all come back.

            • 1 vote
            Reply#20 - Wed Mar 23, 2011 1:34 PM EDT

            After my first round of chemo treatments in 2005, my hair initially came in curly. It eventually went back to my original texture. Cancer came back in 2010, more chemo, this time hair came back straight. I wish the chemo could get rid of the cancer, not just the hair. I have stage 4 metastatic cancer and hair loss is the least of it!

            • 2 votes
            Reply#21 - Wed Mar 23, 2011 1:36 PM EDT

            I truly wish you well, Former Fan. Keep fighting & never give up!!

            • 2 votes
            #21.1 - Wed Mar 23, 2011 1:45 PM EDT

            To Former Fan,

            I agree with bellejournee, never give up!

            I pray that you will be cancer free soon and that all cancer survivors remain cancer free!

            • 1 vote
            #21.2 - Wed Mar 23, 2011 1:57 PM EDT

            third that notion... stay strong. hair is such a small part of who we are, your smile will always shine brighter than any hair you have. been there, done that with the bald head and really, stick a hat on and out the door and live your life. prayers to you as you continue the fight, nothing but hope and faith to you and yours.

            • 2 votes
            #21.3 - Wed Mar 23, 2011 2:33 PM EDT

            Wow! What timing on this piece! Following two stem cell transplants for Multiple Myeloma, my thick, naturally curly and coarse hair became even worse...and at the top back of my head, started to really hurt. I have also been calling those thick, strong curls bed springs! Thanks to a wonderfully sympathetic hairdresser, who taught me to really apply some blow–dryer heat at the roots , I am finally able to style my hair and go to work without a wig. It has been a year and two months since I have had an appreciable amount of hair. I am totally grateful to have my cancer in remission, but the only thing that really freaked me out during all of my treatment, was dealing with the chemo curl!

            • 1 vote
            #21.4 - Wed Mar 23, 2011 3:32 PM EDT

            I too lost all hair including body hair when doing my chemo treatments. After the 2nd treatment I ran my hands thru my hair and filled my office trachcan. After the initial shock of no hair, lashes or brows I wore scarves and hats while at work, my daughter was 2 at the time and she adjusted quickly with "no hair mommy" and at night would sit in my lap and rub my scalp so it would come back. Those little massages must have worked because within 10 weeks of completing chemo I had a full head of beautiful curls which I loved! I was lucky as it all grew back at an even rate which doesn't happen for all patients. The hair loss itself was not so devestating probably because I was stage III and wasn't expecting much and by that point I just felt lucky to be alive! Those curls were below my shoulders by that spring and I cut my hair thinking short, curly hair would be so cute....for some reason I lost all the curls with the haircut. But I am still here and cancer free 15 years later. Good luck and stay strong for all those who are enduring treatments.

            • 1 vote
            #21.5 - Wed Mar 23, 2011 4:19 PM EDT
            Reply

            I actually think Sarah's hair looks better now than before her chemo. Makes her look prettier.

            I had breast cancer 4 years ago myself (Stage 3C/4). I lost all my hair (everywhere). I had curly hair before the chemo and it came back darker (with highlights), curlier, thicker and with soft hair (like a baby's when it first grew out). I love it. It takes longer to straighten (so much more hair), but I am so thankful to have my hair back. The main thing here is that I am alive and I treasure each day!

            • 1 vote
            Reply#22 - Wed Mar 23, 2011 1:48 PM EDT

            Her roots in the "before" picture are dark, even darker than in the "after" picture. Her hair now looks a lot more beautiful and healthy with the curls. It shines a lot more. She should be happy; my mother only grew back patches of hair on her head after chemo, making her rely on a wig or a turban-style wrap for the rest of her life.

              Reply#23 - Wed Mar 23, 2011 1:50 PM EDT

              My mother had NHL in the late '80's. She had 6 rounds of Chemo (was due to have 12), but became so ill, they had to stop it. The dr's told us to take her home and just make her comfortable because she WAS going to die. Our family believes in God and the power of prayer. God took over, healed her of her cancer and she has been cancer free for almost 22 years! She has some side effects of the chemo, including some little bald spots on her head. She wears cute, stylish wigs and looks much younger than her 71 years!!

                #23.1 - Wed Mar 23, 2011 7:35 PM EDT
                Reply

                my little sister had what she called "dishwater" blond hair all her life, that is, was up until she lost it during the chemo. i told her it was good too as she always wore her hair like a member of FFA or one of the rancher's kids, all in a poking fun at it manner never at her. after deb ended treatment her hair came back just as this article describes, tiny tight dark curls that looked almost like a swimmers cap kind of betty boop style. as someone on the outside looking in i can say her hair be it gone or changed, that didn't matter one bit to myself or anyone else for that matter. all we cared about was the girl behind the smile no matter how frail and weak she became, her smile was like a beacon in the darkness, it was our strength, she was our strength even though we tried to tell ourselves otherwise. at first she cared about her hair, for all of a day or two, but after a week without she honestly didn't think or express a care one about it except when stepping outside into the cold and snow when she had forgotten her cap. i foolishly thought the hair made a difference so i tried everything i could in my power to try to take that loss away from her but as it didn't matter to her what was i to do? bangs, wigs, hats, out of all of them and she ended up wearing just one, mine, a hat that i had worn for years whenever i went skiing. all the others sat in a drawer never to be worn. whenever i saw her she had my old ratty skii hat on. i wonder, what would happen if during a cancer family risis we were all blind? what if she/they could not see how the disease had ravaged their body'd, would her state of mind, her spirit have been stronger? what if we could not have seen the cancer's effects also? what if we could have only heard the sound of her voice, felt the touch of her hand in ours? what if...............my little sister had not been the one i, we, all of us had to say goodbye to a few weeks ago, i begged it would be me but it wasn't to be. so many what ifs but you know what, forget all the what ifs, you cannot change the past so cherish the memories and when the time comes move forward and be grateful for the time i, we, all of us have been blessed with. hair, looks in general, all those things superficial, those things you think you knew were so very very important that was until you got a quick and intensive cancer education and the world turned upside down or did we? and what you thought was important isn't and what you never even thought of was and it is too late now. its too late now because,...she is gone. hair, makeup, makeovers, clothes, they may appear to make some people happy but what really makes them happy, brings them joy in the darkest times, is that someone took a time out for them, just for them to make their lives a little bit better and that in the end is what lifts/ed their spirits. never forget time is the most valuable gift you can give any loved one with cancer or with any serious disease for that matter. i'd give anything right about now to cradle her in my arms and say it is all okay, i know with certainty she is okay but as for me i'm a work in progress, but the good days outnumber the bad so things are improving. never give up, always have hope, and love each other with every ounce of strength you have. make movies for the future, make video cards for upcoming birthdays, holidays and the like. celebrate that first birthday without and make it a celebration of their life, of our lives with them and don't all those wigs stashed throughout the house to a good cause as every little bit helps. sorry for any ranting, confusion, bad grammar, it is an emotional post and i don't have it in me to proof it. be well all be good to each other.

                • 5 votes
                Reply#24 - Wed Mar 23, 2011 1:52 PM EDT

                I am so sorry for your loss. Everything you wrote here is so beautifully written, and I bet you anything, your sister would be so proud of your courage to speak up. :) Think of her only as she was, and not how she died. Yes, celebrate her life when her birthday comes around! Have a picnic, or even just do something you know she would have loved to do.

                Take care, friend.

                  #24.1 - Wed Mar 23, 2011 2:48 PM EDT

                  Mikencolo, I am so sorry about the loss of your beloved sister, Deb. It's sweet and touching that she preferred your "old ratty ski hat" over anything else. Probably it reminded her that you were always there for her, and gave her additional strength and comfort.

                  Your wonderful attitude about forgetting the what-ifs, but cherishing the memories and moving forward is a beautiful tribute to your sister. Someday, you and your sister, and her other loved ones will be reunited. In the meantime, I wish you a long and happy life, with many blessings along the way.

                  Thanks for the reminder that the most valuable gift we can give our loved ones is our time. It is so easy to get caught up in the hurry and stress of our lives, and to forget to make time for each other.

                  Big hugs...

                  • 1 vote
                  #24.2 - Wed Mar 23, 2011 5:20 PM EDT

                  mikencolo, good job on your precious and tender post. Here's a big two armed hug for you, your entire family and anyone who is suffering your recent loss. I'm just so proud to read everyone's brave stories on this blog.

                  Hugs and love to all of you Heros!!

                    #24.3 - Thu Mar 24, 2011 4:00 PM EDT
                    Reply

                    I had stage 4 Lung cancer was treated with radiation and chemo. Did not lose my hair. 3 years later it returned in my lympnode and was treated again with both chemo and radiation. I was on carboplatin and was told I might lose my hair, but never did. However, it did start to gray but wasn't sure if it was due to age or drugs. Either way, I am grateful to be alive!!!!!!!! 

                      Reply#25 - Wed Mar 23, 2011 1:59 PM EDT

                      To All You Curlie Cancer Cuties out there: Your responses made me laugh and cry all at once. Also in remission from (breast) cancer...triple negative. Six months of chemo treatment, including the RED DEVIL--AC chemo. Lost it ALL: I mean even where the sun don't shine. I had medium ash-brown hair which I highlighted blonde. I always had to blow dry it straight in humidity or I had atomic bomb mushroom head. It is growing back and it is C-U-R-L-Y, and almost black. Even though I am in my 50s, my hair has virtually NO grey in it. I expected it to grown in grey, but it grew in almost black. The ends (first growth) feel different than the more recent growth--stiff and wiry, and very, very curly. It looks very wild and free, but the first few months after treatment finished I looked like Fatty Arbuckle (Google him); fat moonface from the 'roids and this dark, masculine-looking tangle of growth. But after a MAS with LN removal, this was the least of my problems...I know many of you relate! I save A LOT of money on hair, since there's nothing to taking care of this mop. You know how all those "self-help" books talk about "re-inventing" yourself? I reinvented myself for free, lol, with this creepy, creepy disease.

                      • 2 votes
                      Reply#26 - Wed Mar 23, 2011 2:01 PM EDT

                      I know about that 'Red Devil'. To this day even red kool-aid makes me nauseous. If you get bored with the frizz (I know I did) try an 'Instyler'...can't believe it but that dang thing really works.

                        #26.1 - Wed Mar 23, 2011 8:42 PM EDT

                        Thanks! Will check it out.

                        One of many creepy parts of that AC process: The PUSH!

                        Ughhhh! Red kool-aid. And for me, ketch-up.

                        Quick, where's my little pink basin???

                          #26.2 - Fri Mar 25, 2011 2:53 PM EDT
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