wow it sounds odd but my son has a rare syndome which also makes it were he cant communicate to tell us whats wrong. And there are times he hits his head as if he has a headache and sometimes pukes just out of the blue, and all the above fits to a tee when it happens and posssible causes. Thank-you so much cuz now i have something to tell the doc to check and hopefully it helps me be able to relieve my poor little boy of any more pain in his life. Thank-you much for the info

My son has had this horrible illness since he was 19 -he is now in his thirties. It is a totally disabling disease that no one has found a cause or cure for as yet. It has to do with mitochondrial dysfunction for my other son has an illness that instead of attacking his stomach it attacked his optic nerve and now he is legally blind. The doctors need to research all areas and discover what is happening to the mitochondria in their cells.

Please, research this item further if it sounds reasonable to your situation. I watched a program that showed a young girl suffering from continuous and chronic vomiting, in her sleep, for about two years. They could not find a reason for this until she was taken to a sleep clinic and hooked up to all kinds of wires to detect brain waves and heart function. It was discovered that her vomiting was a form of seizure and the child was epileptic. As I stated at the beginning of this response, please do not make any kind of medical decision based on me repeating the case of this little girl. If this sounds reasonable to you, mention it to your doctor during your next visit. Just because it's on t.v. or on the internet does not make it true!

My son age 14 has stomach migraines or cyclic vomiting syndrome. We have very funny stories of times he has vomited. It is a projectile, massive amount of vomiting, no warning type of vomiting. He throws up whenever he gets overtired, overstimulated or overfed. He threw up in a fastfood restaurant parking lot and the employee of the restaurant was more than pissed about the mess. He projectile vomited in my sister-in-laws bathroom and hit everything in the bathroom except the toilet. She has alot of baskets full of stuff on the counter and it took me 2 hrs to clean it up. He can throw up in the middle of the night and not wake up. My husband told me about 5 yrs. ago to take him to the dr. to find out if anything was wrong. I took him in and the dr. asked when does it happen? I responded, "When he is overtired, overfed or overstimulated." and the dr.'s response, "Well don't get him overtired, overfed or overstimulated." :) I can't wait until he gets married and we tell his new wife at the reception that she is going to have a very interesting night if she keeps him up late on their wedding night. Haha. He also threw up on his way to the bathroom at a restaurant. A police officer was coming in to the bathroom at the same time and the officer said to my son, "Oh I know how you feel." and my husband responded, "Yeah, but I bet yours wasn't from drinking chocolate milk." In the middle of the bathroom, they both had a huge laugh. One good thing about my son's vomiting is he usually feels better after he throw up. He has been hspitalized on occassion for it, but we try to take it in stride and judge each episode as it comes.

My daughter has had this disease for the past 7 years. She is currently 8 1/2. At 18 months old she began vomiting in the middle of the night for no reason. Her temperature plumits and cannot be read on a digital ear thermometer. After visiting the pediatrician, they rubbed a medicine on her wrists used for treating motion sickness. She was then misdiagnosed with allergies and given Clairtin. After a couple years of that, we went to a gastroenterologist. They verified that she didn't have any gastro problems. Once she was old enough to tell me that she was dizzy just prior to vomiting, I knew it was a neurological disorder. We then saw a neurologist and she diagnosed her with CVS. This was after 4 years of trying to find out why she would vomit every 10 weeks. Unlike some of the comments I have read, she has a very predictable cycle. I keep track of her episodes on a calendar, and have for years, it's between 9 and 11 weeks. There is no trigger that we have seen. The summer months seem to go closer to the 9 week mark and the winter months vary between 10 and 11. She has also had episodes back-to-back. It seems that if the vomiting is interrupted for some reason, she will have an episode the next day. Her episodes have always come during the early morning hours. I suffer from menstral migraines. They come with every cycle. Fortunately, they do not cause vomiting. Unfortunately, they last for the first three days of my cycle. I pray that she will outgrow this disease. She has siblings who do not have CVS and she often asks "why me?".

Hi Everyone, It's been a about 5 years since my daughter was diagnosed with CVS. She had it for about 4 years. Long story short, after seeing many Dr's and specialists it was my random google search where I discovered CVS. I took all the information I had gathered to our Dr. He reffered us to the CVS specialist at a major hospital near our house. We waited 6 months to see the specialist at the hospital. He confirmed CVS and basically said give her Tylenol. I was beside myself driving home...and called a friend. She suggested I take my daughter to see her Mom who worked in a health food store. I'm in the health food industry so this was no big deal. I drove straight to the store and my friends Mom told me to give her the following: Swedish Bitters, Apple Cider Vinegar, Flax Oil. My Daughter NEVER vomited again....but did continue to have the pain. About a year later at a health food convention I was telling someone our story and she suggested that I try a product called Bio K ( a probiotic)....it was a product that she sold and she gave me some samples. We have never looked back. My daughter is almost 18 and healthy. I urge you all to try this, it's cheap and worth a try ....as I know how much you are all suffering. Just to let you know, this stuff doesn't taste very good but my daughter was a trooper and always took it. Sorry I can't remember all the qty's but my best guess is about 1 tablespoon of each 2 or 3 times per day. The probiotic was a liquid form for kids. It tasted pretty good. We only did this for about a year. I hope this helps.

i have cvs. it's interesting to see stories and articles about it now... i've had it for about 14 years (adult onset i think, though it's possible that i had episodes as a child that were attributed to other causes). the sad thing is that it took about 8 years to get diagnosed, after several trips to the er and specialists. thank you for raising awareness about this. as scary as it is to vomit for several hours, it is far scarier to wonder if it's because you have cancer. naming it is a great relief.

My sister, who is 26, has had CVS since she was in fifth grade. She is now married and the mother of a 2-year old girl. I have to say I found the tone of this very dismissive. CVS is not something you can turn off by taking a nap. It's not funny having an illness that makes it impossible to keep down food or water. Her case is more severe than most, and it is not uncommon for her to go weeks, or even months without successfully keeping food down. It makes her weak and causes her a great deal of pain.

People often think CVS sufferers are making it up or doing it to themselves. By putting puke jokes around a sickness that disrupts lives and can make it impossible to hold down a job or have a normal social life, you are minimizing their suffering.

This is a legitimate illness, and one that deserves to be treated with a little respect.